We are the first and only non-profit organization focused on driving and accelerating the treatment path for the CHOPS Syndrome, an ultra-rare and multi-organ genetic disease.
We do believe that a diagnosis is the starting point not the ending one: we do not leave room for hopelessness.
After the diagnosis, a fundraiser started in march 2023 gave rise to the construction of this Foundation
CHOPS Syndrome
Manuela
Lawyer Marco del Pinto, participant of the Foundation and legal support, is the holder of DEL PINTO E ASSOCIATI – LAW FIRM, – with many years of experience in corporate, real estate, financial, contractual and employment law. The legal services provided by Del Pinto e Associati have a strong International and local component. A reference point at a national level: Il Sole 24 Ore has been a respected and prominent Italian law firms since 2022.
Lainey Moseley
US spokesperson for the Foundation, journalist and Leta’s mother. (Leta is the first CHOPS diagnosed kid in the world), Founder of the group CHOPS Syndrome Global. Producer of “Too Rare to care” movie.
Dr. Fabrizio Giovanni Poggiani
Financial accountant.
Dr. Alessandro Pescari
Financial accountant and supervisor.
Filomena Cataldo
Press Agent