Fondazione CHOPS
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Our structure

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The Foundation

Board of directors

Presidente Manuela Mallamaci

Manuela

Manuela Mallamaci
She is President and Founder of Fondazione CHOPS Malattie Rare (CHOPS Foundation Rare Diseases), a senior researcher in the Departments of Physics and Chemistry at the University of Palermo, Italy,
Reina Raffo

Reina

Reina Raffo
Vice-president and Luce’s mother
Consigliere Giovanni Zampella

Giovanni

Giovanni Zampella
Vice President and Mario’s father
Luca Battiloni

Luca

Luca Battiloni
Advisor and Luce’s father
Consigliere Giovanni Mallamaci

Giovanni

Giovanni Mallamaci
Advisor and Mario’s uncle

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Studio Legale Del Pinto

Lawyer Marco del Pinto, participant of the Foundation and legal support, is the holder of DEL PINTO E ASSOCIATI – LAW FIRM, – with many years of experience in corporate, real estate, financial, contractual and employment law. The legal services provided by Del Pinto e Associati have a strong International and local component. A reference point at a national level: Il Sole 24 Ore has been a respected and prominent Italian law firms since 2022.

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Medical and scientific advisory board

Dott. Ian Krantz

Prof. Ian Krantz

Ian D. Krantz. MD, Division Chief of Medical Genetics at Cohen Children’s Medical Center and System Vice President of Genetics at Northwell Health, New York and at the Zucker School of Medicine, Hofstra University. Emeritus Professor of Pediatrics at the Perelman School of Medicine, University of Pennsylvania.
Dott.ssa Valentina Massa

Prof. Valentina Massa

Professor in Applied Biology at the Department of Health Science, University of Milan, Italy.
Dott.ssa Emanuela Scarano

Dr. Emanuela Scarano

Medical director of Paediatrics - Rare Genetic Disease Division, Department of Woman and Children’s Health, IRCSS Policlinico Sant’Orsola, Bologna, Italy
Dott. Katsuhiko Shirahige

Dr. Katsuhiko Shirahige

Researcher at Laboratory of Genome Structure and Function, Institute for Quantitative Biosciences, University of Tokyo; Karolinska Institutet, Dept. of Biosciences and Nutrition, Dept. of Cell and Molecular Biology,Biomedicum, Stockholm.
Dott.ssa Eleonora Orlandini

Dr. Eleonora Orlandini

Pediatrician at the Rare Genetic Disease Division, Department of Woman and Children’s Health, IRCSS Policlinico Sant’Orsola, Bologna, Italy
Dr. Neil Hackett

Dr. Neil Hackett

Genetic consultant for the Foundation and Research Professor in Genetic Medicine Weill Cornell Medical College, NY, US.

Professionals supporting the Foundation

Lainey Moseley

US spokesperson for the Foundation, journalist and Leta’s mother. (Leta is the first CHOPS diagnosed kid in the world), Founder of the group CHOPS Syndrome Global. Producer of “Too Rare to care” movie.

Nicola Santobianchi

Physiotherapist at Pt Pro Center, Massa, Italy.

Dr. Fabrizio Giovanni Poggiani

Financial accountant.

Dr. Alessandro Pescari

Financial accountant and supervisor.

Valentina Biondi

Logo Designer

Filomena Cataldo

Press Agent

Fundraisers:

Carmen Massa, Teresa Barbara