The advisory board is an international group of experts, as defined in our statutes, responsible for providing opinions on specific scientific activities and projects of the Foundation and recommending strategies and work programs to advance the Foundation’s objectives.
Prof. Ian Krantz
Ian D. Krantz. MD, Division Chief of Medical Genetics at Cohen Children’s Medical Center and System Vice President of Genetics at Northwell Health, New
York and at the Zucker School of Medicine, Hofstra University. Emeritus Professor of Pediatrics at the Perelman School of Medicine, University of Pennsylvania.
Prof. Andrea Ballabio
Founder and director from 1994 to 2024 of the Telethon Institute of Genetics and Medicine (TIGEM) in Naples, Italy. Full professor of Medical Genetics, Department of Translational Medicine, University of Naples "Federico II", Italy.
Prof. Valentina Massa
Professor in Applied Biology at the Department of Health Science, University of Milan, Italy.
Dr. Ali Shilatifard
Chair of the Department of Biochemistry and Molecular Genetics, and Director of the Simpson Querrey Institute for Epigenetics, Chicago
Dr. Emanuela Scarano
Medical director of Paediatrics - Rare Genetic Disease Division, Department of Woman and Children’s Health, IRCSS Policlinico Sant’Orsola, Bologna, Italy
Dr. Katsuhiko Shirahige
Researcher at Laboratory of Genome Structure and Function, Institute for Quantitative Biosciences, University of Tokyo; Karolinska Institutet, Dept. of Biosciences and Nutrition, Dept. of Cell and Molecular Biology,Biomedicum, Stockholm.
Dr. Eleonora Orlandini
Pediatrician at the Rare Genetic Disease Division, Department of Woman and Children’s Health, IRCSS Policlinico Sant’Orsola, Bologna, Italy
Dr. Sara Bozzetto
Primary care paediatrician with extensive experience in paediatric respiratory and allergic diseases.
Dr. Neil Hackett
Genetic consultant for the Foundation and Research Professor in Genetic Medicine Weill Cornell Medical College, NY, US.
La Sindrome Chops